Transform Health stewarded the development of the Health Data Governance Principles, under the leadership of its Policy Circle, whose members at the time included: Marwa Azelmat (Young Experts: Tech 4 Health), Joseline Carias (Central American Health Informatics Network/RECAINSA), Marie Donaldson, Vikas Dwivedi (Palladium Group/Health Data Collaborative’s Digital and Data Governance Working Group), Vidya Mahadevan (Health Data Collaborative’s Digital and Data Governance Working Group), Ulla Jasper (Fondation Botnar), Parminder Jeet Singh (IT for Change), Rigveda Kadam (FIND), Alice Liu (I-DAIR), Beatrice Murage (Philips/ Digital Connected Care Coalition), Erica Troncoso (Jhpiego), and Jai Ganesh Udayasankaran (Asia eHealth Information Network/AeHIN).
This draft of the Health Data Governance Principles was prepared for Transform Health by Anna Volbrecht (PATH) and Akarsh Venkatasubramanian (Transform Health). Valuable inputs were provided by Transform Health colleagues, including Mathilde Forslund, Asmita Ghosh, Louise Holly, Kirsten Mathieson, and Frank Smith. PATH provided important contributions to this work, including Jacqueline Deelstra, Hallie Goertz, Kanishka Katara, Neema Ringo, Dykki Settle, and Anna Volbrecht. Other partners who provided inputs include: Ashley Bennett (Facebook, formerly PATH), Keertana Duppala (FIND), Mark Herringer (Healthsites), Riccardo Lampariello (Terre des Hommes), Angélica Baptista Silva (Fiocruz), and Waruguru Wanjau (Kenya Medical Association).
The following partners were instrumental in supporting the global and regional consultations: PATH, AeHIN, the BID Learning Network, Mwan Events, RECAINSA, Wilton Park, the Lancet/FT Commission on Governing Health Futures 2030 and Young Experts: Tech 4 Health.
This work was funded by Fondation Botnar.